Hello!

I'm Mersadie, and I'd like to share my story, which is uniquely mine yet part of a much larger narrative. As a parent of a child with congenital heart disease, and someone who also lives with it, I understand this challenge intimately. This condition affects many, with varied outcomes, but at its core lies strength and love.

Growing up in Bismarck, North Dakota, I was a cheerful child, often sweaty and with a racing heartbeat. A doctor's visit revealed two holes in my heart. I had surgery at Minnesota Children's Hospital, and though it went well, I always faced the prospect of more medical visits.

Despite academic struggles, I found my footing, left high school for a GED, and worked my way up at Ruby Tuesday. In my early adult years, being around alcoholics and trying to fix everything took a toll on my mental health, resulting in panic-induced seizures.

In 2017, my relative Luis Ortiz, who faced cancer with bravery, inspired me as I discovered the potential heart issues of my unborn child. When I learned I'd have a girl with Tetralogy of Fallot, I turned to a high-risk OB-GYN for care. Malia was born on September 4th, 2019, facing unique challenges. With a G-tube for feeding, she gradually grew stronger, eventually undergoing surgery for truncus arteriosus, which went successfully despite the tough road.

Her journey included setbacks like a chyle leak requiring more procedures, but she thrived with early interventions. Over time, Malia was weaned off medications and began to lead a more typical childhood, participating in dance and 4-H. She faced significant personal losses, including her Uncle Luis and a grandmother, but showed resilience, each experience underscoring the importance of family and cherishing each moment.

In 2024, another surgery loomed, emphasizing the ongoing nature of her condition. Malia's timely recovery was a testament to her strength and our family's support. As we celebrated milestones, we recognized that these victories are precious.

This story is just one of many, echoing similar struggles and triumphs. Life with congenital heart defects has no guaranteed fairytale endings, but these children are our heroes. It’s important to acknowledge these diverse narratives, celebrating the courage of these young warriors.

The founding of Brave Hearts Children's Network Inc. is rooted in my journey and my daughter’s. What began in heartbreak has evolved into hope and impact. Our mission involves crafting a sanctuary where families feel supported, celebrating triumphs and ensuring no family faces their journey alone. Our organization is driven by the transformative power of love and the unbreakable bond of community.

My personal journey and founding of Brave Hearts Children's Network Inc. are deeply intertwined. Growing up with congenital heart disease shaped my understanding of the challenges that come with it. My daughter Malia, born with Truncus Arteriosus, faces her own hurdles, exemplifying strength in overcoming medical tribulations and personal losses. Our mission is to provide a sanctuary of support for families grappling with congenital heart defects, celebrating each triumph and ensuring no one faces their journey alone. Our commitment is fueled by love and community, focusing on resilience and the collective strength of our stories.